Immunotherapy

[Upside Down]

13 hours ago, DeeCee said:

Tiredness, feel the cold more, itchy skin due to the treatment I'm having but otherwise no bad side effects.......

Hasn't been caught in time unfortunately, I've got another 10 months of this treatment and then it will be observe, scan every 3 months, then maybe chemo or radiotherapy when (and it will) the tumour starts growing again.

I'm stage 4 terminal on palliative care/ treatment but not feeling as ill as I was expecting tbh. 🤞

Not great Dee Cee but glad you're doing ok considering.

This has been good taking us with you on the journey and hopefully you'll get the feeling that we're all wishing you the best in this.

Have a great Christmas pal.

[DeeCee]

10 hours ago, Upside Down said:

Not great Dee Cee but glad you're doing ok considering.

This has been good taking us with you on the journey and hopefully you'll get the feeling that we're all wishing you the best in this.

Have a great Christmas pal.

Thanks mate, I wish the same to you and your's 🌲

[Riversider28]

Yes, we’re all with you DC, all the best over the festive period and into 2025. 🍻

[Mike E]

Sort of relevant to this thread?

Some of you will recall in 2014 my dad was diagnosed prostate cancer, PSA 777, riddled with it. Given 5-7 years to live back then.

He’s still alive and kicking 10 years later (albeit losing his marbles a bit) thanks ostensibly to drugs on the ‘Stampede’ trial, at a cost of £6,000/month to the NHS (£720,000 has been spent on his cancer alone 😬 ).

The trial has now stopped, meaning he only has his remaining tablets and then falls back to ‘standard’ treatment. Turns out he was the miracle patient and so many other men haven’t actually been helped much by the trial.

Members of this site contributed nearly 1/3rd of all donations to £1200 raised when I ran the Edinburgh marathon in 2016, so I figured some people wouldn’t mind being updated.

Don’t know how long he has, but the trial means he’s seen me get married, and met his first two grandchildren (I expect he’ll meet his third, too in March). Just feels very bittersweet now that the trial (quite rightly) has to end.

 

Edited December 21, 2024 by Mike E

[DeeCee]

Great to read Mike 🏆

[J*B]

I'm sure he's had a superb 10 years Mike. 

[wilsdenrover]

On 21/12/2024 at 18:05, Mike E said:

Sort of relevant to this thread?

Some of you will recall in 2014 my dad was diagnosed prostate cancer, PSA 777, riddled with it. Given 5-7 years to live back then.

He’s still alive and kicking 10 years later (albeit losing his marbles a bit) thanks ostensibly to drugs on the ‘Stampede’ trial, at a cost of £6,000/month to the NHS (£720,000 has been spent on his cancer alone 😬 ).

The trial has now stopped, meaning he only has his remaining tablets and then falls back to ‘standard’ treatment. Turns out he was the miracle patient and so many other men haven’t actually been helped much by the trial.

Members of this site contributed nearly 1/3rd of all donations to £1200 raised when I ran the Edinburgh marathon in 2016, so I figured some people wouldn’t mind being updated.

Don’t know how long he has, but the trial means he’s seen me get married, and met his first two grandchildren (I expect he’ll meet his third, too in March). Just feels very bittersweet now that the trial (quite rightly) has to end.

 

My father in law was diagnosed with prostate cancer in October 2013 and died just three months later.

I’m so so pleased that you and your father have been able to make all those extra memories together.

[Upside Down]

Just went to a do for a former work mate of mine the other day. He's been given a few months.

Unbelievable really, I don't think he's even 65.

He looked in fine fettle though and there was a huge turnout which was heartwarming to see.

[roverandout]

My mum got no help from the Dr's or paramedics. They wouldn't come and see her last year. The gp's said it was too far to travel even though it was in their jurisdiction.  By then it was too late. We only took her in because we thought she had a stroke.  Obviously it turned out much worse being cancer. She died a week after being in hospital.  I'll never forgive those who failed her

Edited December 23, 2024 by roverandout

[DeeCee]

So sad to read. R.I.P. your mum.

[roverandout]

47 minutes ago, DeeCee said:

So sad to read. R.I.P. your mum.

Thanks hope u feel better soon

[yeti-dog]

Hi @DeeCee.

I've been following this thread and wondered how you're getting on. I'm in the same club as you unfortunately, and will be having liver surgery in August to hopefully remove my cancerous lesions.

I can see you're still active on the forum which is great news. I do hope your treatment is continuing to go well and life is as good as it can be...

[DeeCee]

2 hours ago, yeti-dog said:

Hi @DeeCee.

I've been following this thread and wondered how you're getting on. I'm in the same club as you unfortunately, and will be having liver surgery in August to hopefully remove my cancerous lesions.

I can see you're still active on the forum which is great news. I do hope your treatment is continuing to go well and life is as good as it can be...

Cheers @yeti-dog,

Thanks, my treatment is going well 🤞 I have my last session of immunotherapy on 6th August (it's a 2 year course) and after that I'll have 3 monthly scans.  When (and it will) the tumour in my lung starts growing again (may be anything from 6 months to 5 years, seemingly) I will then go on a course of chemotherapy or radiotherapy.

I'm fairly active still, get tired easily and am a lot shorter of breath but if you'd have given me this 2 years ago when I was diagnosed, I'd have taken it!  

I hope your surgery is successful and you have a good support network around you.  I spent a lot of time researching all the various aspects of being a cancer sufferer, Macmillan are a great resource for this and have given me lots of useful information.

I live alone and have great neighbours but all my family are still in Lancashire so I have to be pretty independent which suits me as I enjoy my own company 😁

My biggest driving force is having my dogs, they give me a reason to get up in the mornings and a positive start to the day.

 Positive mental attitude is a big factor, I go into my oncology and treatment sessions with a cheery attitude, there's always people worse off, quite often a lot younger.

I don't know how long you've been diagnosed but when you visit hospital regularly (I'm there a couple of times every month) it becomes less daunting and more "routine". 

Thanks for asking about my health, it's been quite cathartic putting my thoughts down in writing 👍

Good luck with your treatment, the forthcoming surgery means you're moving forward 👏 

Once again, best wishes.

 

Edited 3 hours ago by DeeCee
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